One of the eight areas of focus at Sanford Research is pediatric and rare diseases. Generally, rare disease is defined as a disease that affects less than 200,000 people in the United States.
About 7,000 of these diseases exist with treatments for less than five percent. Ben Forred, a project manager at Sanford Research, explains that while having a rare disease is, in fact, rare, collectively about 30 million Americans have one.
“It turns out that it not all that rare to have a rare disease,” said Forred. “A rare disease, unfortunately and as heart breaking as it is to say, typically affects a child.”
In February, Sanford Health will host the Rare Disease Symposium and Great Plains Rare Disease Summit.
You can learn more about rare diseases and Sanford Research in this podcast edition of “A Better You,” which airs Saturday on KSOO-AM.
Sanford Health is one of the largest health care systems in the nation, with 44 hospitals and nearly 300 clinics in nine states and four countries.